About the GANSID Congress 2023
The inaugural Global Gathering of the Inherited Blood Disorders Community 2023 is a virtual gathering aimed to bring together the inherited blood disorders community to:
- Identify opportunities for collective actions to improve outcomes for people impacted by inherited blood disorders
- Enable cross-disease information exchange and best-practice sharing
- Foster cross-disease collaborations at the regional/local level
- Shape GANSID’s focus areas and strategic direction
What to Expect: During the course of the two days, we aim to create an inclusive and interactive experience for participants, with multiple opportunities to share their perspectives and input. There will be:
- Plenary sessions with panelists including advocate leaders, public health officials, researchers, health care providers, industry representatives, and other experts
- Interactive regional workshops for patient advocates, patient organizations, clinicians, and industry partners that aim to:
- Foster connections with advocates at the regional level
- Provide an opportunity for regional advocates to share key challenges they are facing (and hear from other Inherited Blood Disorders advocates in their regions)
- Identify opportunities for cross-disease regional collaborations
- Industry Alliance Symposium with a panel of global leaders, clinicians, and industry partners from the inherited blood disorders community in a candid discussion on Forward Together: Defining Collective Actions to Amplify Our Impact.
Expected Outcomes: At the conclusion of the inaugural global gathering of the inherited blood disorders community, there would be:
- Fostered connections at the regional level (with regional advocates having shared key challenges they are facing and heard from other Inherited Blood Disorders advocates in their region)
- Identified opportunities for cross-disease regional collaborations
- An inclusive and interactive experience for participants, with multiple opportunities for participants to share their perspectives and input
- Participants (including World Health Organization’s representatives) insights on the gaps and needs of the inherited blood disorders community
- Identified regional training, mentorship, and capacity-building needs of patient organizations
- Improved visibility and profile of inherited blood disorders especially in low and medium-resource countries
- Improved regional cohesiveness and connectivity among patient organizations serving the sickle cell and other inherited blood disorders community.