Day 1 – Plenary Session
Official Opening & GANSID Strategic Plan Framework
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Day 1 – Plenary Session
The Power in the Collective: The Vision for GANSID
Moderated by: Dr. Jennifer Bryan, University Health Network, Canada
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Day 1 – Plenary Session
Making the Promise of Innovation a Reality for All: Global Access to Gene Therapy & Other New Therapeutic Approaches
Moderated by: Dr. Mariangella Pellegrini, Program manager, ERN-EuroBloodNet: the European Reference Network on Rare Hematological Diseases
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Day 1 – Plenary Session
Screening & Diagnosis of Inherited Blood Disorders: Opportunities for Cross-Country Collaborations
Moderated by: Mr. Andrew Zapfel, American Society of Hematology (ASH)
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Day 1 – Simultaneous Session – REGIONAL WORKSHOPS
GANSID Workshop – North America Region
Dr. Titilope Fasipe, Sickle Cell & Thalassemia Program, Texas Medical Centre: Can the Power of the Collective Advance Thalassemia Treatments in North America?
Dr. Leonard Valentino, National Hemophilia Foundation, New York, USA: Lessons from Hemophilia Advocacy Successes in North America
Dr. Carolyn Rowley, Cayenne Wellness Centre, California, USA: Key Ingredients of Successful Collaborative Sickle Cell Disease Initiatives in North America
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Day 1 – Simultaneous Session – REGIONAL WORKSHOPS
GANSID Workshop – Latin America
Dr. Marimilia Pita, Samaritano hospital Sao Paolo, Brazil
Ms. Caroline Campinas, Patient advocate, Brazil
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Day 1 – Simultaneous Session – REGIONAL WORKSHOPS
GANSID Workshop- Caribbean
Dr. Felicia Ikolo, Sickle Cell Association of Grenada: Challenges, Triumphs, and Next Steps for Patient Organizations and Patients with Hereditary Blood Disorders in the Caribbean
Dr. Jennifer Knight-Madden, Caribbean Institute for Health Research, University of West Indies: The Hereditary Blood Disorders’ Treatment Gaps in the Caribbean
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Day 2 – Simultaneous Session – REGIONAL WORKSHOPS
Asia PAC
Vinita Srivastava, Ministry of Tribal Affairs, Government of India Prabhat Sinha, Boehringer Ingelheim India
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Day 2 – Simultaneous Session – REGIONAL WORKSHOPS
Europe
Clive Smith, Chair, National Hemophilia Society, UK: Best Practices in Patient Advocacy.
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Day 2 – Simultaneous Session – REGIONAL WORKSHOPS
Middle East
Mr. Khaled Warwar, Patient Advocate, Lebanon
Mr. Zakaria Alkadhem, Patient Advocate-Bahrain Society for Sickle Cell Disease Patient Care, Bahrain
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Day 2 – Simultaneous Sessions
Regional Workshop – Africa
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Day 2 – Plenary Session
Expanding Global Data Collection & Clinical Research: Addressing Gaps Through Collaborative Initiatives
Moderated by: Dr. Donnell Edward Ivy
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Day 2 – Plenary Session
Strengthening the Infrastructure for Care & Treatment of Inherited Blood Disorders- Challenges & Opportunities for Cross-Disease Efforts
Moderated by: Dr. Annette Akinsete,
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Day 2 – Industry Alliance Symposium
Forward Together: Defining Collective Actions to Amplify our Impact in Research
A session with Industry partners, Clinicians and Patient Advocates from the Inherited Blood Disorders Community
Moderated by: Dr. Sandra Newton and Dr. Eydith Ortiz
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