Inherited Blood Disorders

Inherited Blood Disorders

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  • Home
  • About Us
    • Vision, Mission, and Objectives
    • Governance
      • About the GANSID
      • Board of Directors
      • Executive Advisory Council
    • Members
    • Affiliates
    • Regional Networks
    • Inherited Blood Disorders
      • Sickle Cell Disease
      • Thalassemia Disorder
      • Hemophilia
      • Aplastic Anemia
      • Fanconi Anemia
  • Health Care Providers
  • Patient Organizations
  • Programs
    • Advocacy
    • Capacity Building
    • Clinical Trial and Research
    • Education and Resources
      • Inaugural Congress 2023
      • Downloadable Brochures
  • Get involved
    • Apply for Membership
    • Be an Affiliate
    • Become a Volunteer
    • Join the Global WhatsApp forum here
    • Share Your Story
    • Sign-up for GANSID’s Newsletter
    • Read Our Blog
  • Events
    • GANSID’s Events
      • GANSID Roundtable at ASH
      • World Sickle Cell Day
      • GANSID Launches
      • Pre-Launch Meeting (Nigeria)
    • Videos
    • Pictures
    • Members’ Events
  • Contact Us

gansid con 2023 B The Global Action Network for Sickle Cell & Other Inherited Blood Disorders, in collaboration and partnership with multiple stakeholders, hopes to meet the needs of people living with inherited blood disorders no matter where they live in the world Shining light on inherited
blood disorders globally

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InHeBloodDisor2023-10-05T01:03:21+00:00

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🤝GANSID Roundtable at ASH, Casgevy in the News, etc. Good day folks! While we are excited to let you know that the GANSID will be holding a roundtable on Dec. 10th during the upcoming American Society of Hematology Annual Meeting and Exposition, we are even more excited to let you know that the medical regulators in the UK have approved CASGEVY-a gene therapy that aims to cure two blood disorders-sickle cell disease and thalassemia. This is great news for the hereditary blood disorders community as this presents a viable cure for more people but how can we make this more accessible for people in low and medium-resource countries? Read our article on CASGEVY here *|https://us21.campaign-archive.com/?u=aa52a85cae5d67da339fbfe06&id=876969fca2|*
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🗒️ Concurrent Regional Workshops | North America ⏱️ 1:00 PM - 2:30 PM EST 🔈 Dr. Titilope Fasipe | USA Join North America’s session with Dr. Titilope Fasipe, MD, PhD from the Texas Medical Centre. A renowned Physician-Advocate for sickle cell, Dr. Fasipe actively champions strategies to overcome challenges faced by those with the disease. As chair of the Sickle Cell Task Force and a member of key professional bodies, she’s at the forefront of public health and policy efforts. Dive deeper into her insights and engage in transformative discussions. Register now! #GANSIDCongress2023 #InheritedBloodDisorders #AdvocacyInnovation #GANSIDCongress #MedicalBreakthroughs #GlobalHealthAdvocacy #CuttingEdgeResearch #MedicalNetworking #HealthcareCongress2023 #VirtualMedicalEvent
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🗒️ Concurrent Regional Workshops | North America ⏱️ 1:00 PM - 2:30 PM EST 🔈 Dr. Leonard A. Valentino | USA Discover the expertise of North America’s Dr. Leonard A. Valentino, MD, current President & CEO of the National Bleeding Disorders Foundation. With over two decades at Rush University Medical Center, Dr. Valentino has vast experience in pediatric hematology-oncology and has significantly contributed to the biopharmaceutical industry, notably at Spark Therapeutics. Renowned for treating a range of bleeding disorders, he’s authored 200+ research papers and delved deep into hemophilia joint diseases. As editor of Expert Review of Hematology, his insights are invaluable. Join our session to learn from the best in the field! #GANSIDCongress2023 #InheritedBloodDisorders #AdvocacyInnovation #GANSIDCongress #MedicalBreakthroughs #GlobalHealthAdvocacy #CuttingEdgeResearch #MedicalNetworking #HealthcareCongress2023 #VirtualMedicalEvent
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🗒️ Concurrent Regional Workshops | North America ⏱️ 1:00 PM - 2:30 PM EST 🔈 Dr. Carolyn Rowley | USA Join North America’s leading expert, Dr. Carolyn Rowley of Cayenne Wellness Center, @cayennewellness California, as she champions quality care for sickle cell patients. Not only is she the founder of a dedicated non-profit, but she’s also renowned for her innovative 3-4-4 nutritional program. With accolades like ‘Person of the Year’ by NIH and a robust educational background, Dr. Rowley is reshaping emergency care standards. Dive deep into her insights. #GANSIDCongress2023 #InheritedBloodDisorders #AdvocacyInnovation #GANSIDCongress #MedicalBreakthroughs #GlobalHealthAdvocacy #CuttingEdgeResearch #MedicalNetworking #HealthcareCongress2023 #virtualmedicalevent
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