With the continued interest of the World Health Organization and similar global agencies in improving the health outcomes of neglected diseases including inherited blood disorders such as sickle cell disease, the GANSID is working to strengthen the capacity of patient organizations and clinicians serving the hereditary blood disorders community.
Patient Organizations: It provides training, mentorship, and other capacity-building support to patient organizations to ensure they are adept at running efficient organizations and advocating with their governments to improve patient access to treatments and invariably health outcomes of people with hereditary blood disorders (HBD)
Training Needs Survey
The GANSID is calling its member organizations to identify their training needs by completing and submitting a 5-minute survey here. Your input as a patient organization would help GANSID in developing the training, mentorship, and capacity curriculum tailored to your needs and region.
Training, mentorship, and capacity-building opportunities are only available to primary members of the Global Action Network for Sickle Cell & Other Inherited Blood Disorders who must be patient organizations serving the inherited blood disorders communities.
Healthcare Providers: The Global Action Network for Sickle Cell & Other Inherited Blood Disorders, in collaboration and partnership with multiple stakeholders, hopes to enhance and expand healthcare provider’s (HCPs) early education, training, mentorship, and access to best practices guidelines (resources) in order to improve patients’ outcomes no matter where they live in the world.