With the continued interest of the World Health Organization and similar global agencies in improving the health outcomes of neglected diseases, including inherited blood disorders such as sickle cell disease, the GANSID is working to strengthen the capacity of patient organizations and clinicians serving the inherited blood disorders (IBD) community.
Patient Organizations: The GANSID provides training, mentorship, and other capacity-building support to patient organizations to ensure they are adept at running efficient organizations and advocating with their governments to improve patient access to treatments and, invariably, health outcomes of people with inherited blood disorders (IBD)
Training, mentorship, and capacity-building opportunities are available to primary members of the Global Action Network for Sickle Cell & Other Inherited Blood Disorders who must be patient organizations serving the inherited blood disorders communities.
Read more about patient organizations at the link here
To complete our 8-Module online course, start here
Healthcare Providers: The Global Action Network for Sickle Cell & Other Inherited Blood Disorders, in collaboration and partnership with multiple stakeholders, is enhancing and expanding healthcare providers’ (HCPs) early and continuing education, training, mentorship, and access to best practices guidelines (resources) to improve patients’ outcomes no matter where they live in the world.
To learn more about how we support healthcare providers, click here