Share Your Story - Inherited Blood Disorders

Running an effective patient organization requires more than passion. The GANSID invites you to share your story and help our community understand the “what, why, and how you do what you do”. You just never know- your story may help someone else. Share today!

Amplifying our Impact Together

Please submit your story by using the form at the bottom of this webpage.

Name(Required)

First Last

Email(Required)

Country(Required)

Name of your organization(Required)

Identify your inherited blood disorder(Required)

Provide the overall experience (including your notable challenges and successes) of operating your patient organization. Do not forget to include the “what, why and how you do what you do”. Bullet point format is welcome

What is a most cogent need for your organization?

What are the next steps for your organization?

Why did you share your story? Do you think it may impact others?(Required)

File

Max. file size: 128 MB.

Upload your photo(s), video(s) or audio recording(s) Videos should be under 2mins and in .mov or .mp4 Drop files here or Select Files Accepted file types: jpg, jpeg, png, mov, mp4, Max. file size: 128 MB.