CASGEVY: A Cure for Sickle Cell & Thalassemia Disorders. Thornton, Canada, November 17, 2023, Casgevy by the Boston-based pharmaceutical company, Vertex is the first medicine to be licensed that uses the innovative genome-editing tool CRISPR, for which its inventors (Emmanuelle Charpentier of the Max Planck Unit for the Science of Pathogens and Jennifer Doudna of the University of California, Berkeley) were awarded the Nobel Prize in Chemistry in 2020 The inventors first showed that CRISPR—which
Passion and advocacy for a cause often spring from personal experience, be it from a professional, patient, or caregiver angle. It is no different with sickle cell or any other inherited blood condition. Many times, individuals and families from around the world with the intention to raise aloft the flag of their health condition/experience often lack the connection, the necessary resources, and the skillsets to sustain their advocacy goals leading to interest waning and advocacy