The Global Action Network for Sickle Cell & Other Inherited Blood Disorders (GANSID) recognizes that many patient organizations serving the sickle cell & other inherited blood disorders communities (especially in the low and medium-resource countries) lack the training and resources necessary to improve and expand advocacy efforts and patient support initiatives.
This is largely due to limited connectedness and resource-sharing opportunities across the inherited blood disorders community.
As such, the Global Action Network for Sickle Cell & Other Inherited Blood Disorders, through its regional skills development and knowledge exchange program (sharing of best practices), will ensure a more resilient, empowered, and effective inherited blood disorders community.
It would amplify the impact of the patient organizations serving the inherited blood disorders community, especially in the regions of the world facing acute challenges due to underdeveloped healthcare systems, poverty, and a lack of disease awareness among patient populations.
There will be sharing of resources, tools, and expertise to maximize advocacy efforts. As a result, more patient organizations in the inherited blood disorders community will possess the necessary skill set to advocate on behalf of their families with schools, workplaces, hospitals, and governments. They will be able to deliver strong awareness programs, improve care and treatment and attract more research funding into their disease areas, most especially in the low and medium-resource countries.
This will lead to increased capacity, coordination, and collaboration of the members of the Global Action Network for Sickle Cell & Other Inherited Blood Disorders. In addition, more organizations under our umbrella would be empowered to make meaningful differences in the lives of the people they serve in their own localities, countries, and regions.
Training, mentorship, and capacity-building opportunities are only available to primary members of the Global Action Network for Sickle Cell & Other Inherited Blood Disorders who must be patient organizations serving the inherited blood disorders communities.
Organizations interested in joining the Global Action Network for Sickle Cell & Other Inherited Blood Disorders must complete a membership form at the link here
Global Gathering – October 20-21, 2023: Register here to attend the trailblazer virtual gathering of the global inherited blood disorders community slated for October 20-21, 2023. Attendees will include research and healthcare professionals, patient organizations, public health, government agencies, blood operators, academic societies, and industry partners. As a part of the inherited blood disorders puzzle, your input is essential in shaping the future of the global inherited blood disorders community.