The Global Action Network for Sickle Cell & Other Inherited Blood Disorders (GANSID)
Volunteer Job Position: Regional Lead serving one of the regions listed on page 2
Reports to: Chief Executive Officer (CEO)
Accountable To: Chief Executive Officer (CEO)
Purpose of the Position
Are you a global leader passionate about volunteering to make a difference in advancing global cooperation among medical professionals and people affected by hereditary blood disorders? If yes, we have a great opportunity for you to utilize your skills by leading GANSID’s work in your region. The regional lead will work directly with the GANSID CEO as well as national and state level patient organizations and clinicians in advancing capacity building, disease specific and cross-disease collaborative initiatives.
Working Environment: The regional lead will work in a fast paced, high demand environment and maintain professionalism and efficiency working with limited supervision, and exerting initiative, good judgment, and excellent communication skills. He/she will deliver key insights on essential regional programs and coordinate training and mentorship programs for patient organizations while contributing to shaping and advancing efforts that ensure the promise of new inherited blood disorders innovation can be fully realized for all patients.
The Regional Lead will among other responsibilities:
- Work under the direct supervision of the Chief Executive Officer and in close coordination with other regional coordinators
- Have a strong knowledge of their region
- Support the CEO in identifying regional priorities and elevating regional needs/priorities to leadership
- Work with the CEO to execute programmes at regional level
- Ability to recruit volunteers across multiple countries to support the region
- Support the facilitation of strategic leadership training, and implementation of workforce plans
- Extend your network among different organizations and make long-term, invaluable connections
- Support collaborative initiatives with multiple stakeholders across the hereditary blood disorders community and other global health ecosystem
- Experience working with governments and not-for-profit organizations
Remuneration: Non-salaried. Approved expenses will be reimbursed and an agreed upon honorarium will be provided
Qualifications:
- Background in science, health, or medicine
- Strong organizational management and interpersonal communication skills
- Ability to work independently and with a team
- Availability for 5-10 hours/week
- Familiarity with the region and its healthcare systems
- Experience working with more than one country is an asset
- Experience in advocacy, training and mentorship program is required
- Passion for making a difference in the lives of people with hereditary blood disorders
- Knowledge of hereditary blood disorders
- Cross-cultural communication skills
- Language proficiency: Proficiency in one or more languages spoken in your region of responsibility would be an added advantage. This could include English, French, Spanish, Portuguese, Arabic, Chinese, or any other language commonly spoken in the region.
- Strong leadership experience
- Analytical and problem-solving skills
Regions:
The GANSID has eight regions:
African Region (AFR),
Americas-North,
Americas-Central and South,
Caribbean,
South-East Asian Region (SEAR),
European Region (EUR),
Eastern Mediterranean Region (EMR),
and Western Pacific Region (WPR).
Volunteering Criteria and Service Rules:
- Regional Coordinators are not members of the Board of Governance or paid staff of the GANSID
- Regional coordinators are volunteers donating their time and expertise to support GANSID’s work
- Regional Coordinators will not receive any living allowances or any other kind of financial compensation for their service except for agreed upon expenses and honorarium
- Where expectations are unmet, or for any reasons whatsoever, the GANSID may terminate the volunteer’s contract at any time
Join us in making a difference in the world, from anywhere in the world!
Submit Resume to: volunteer@inheritedblooddisorders.world
Follow us on social media @iblooddisorders
Learn more about us at: www.inheritedblooddisorders.world
Who we are: GANSID is a global network that aims to advance care, treatment, research, capacity building, and education for inherited blood disorders in regions of the world facing acute challenges due to underdeveloped healthcare systems, poverty, and a lack of disease awareness among patient populations.