Videos - Inherited Blood Disorders

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YouTube Video VVVVM2FKNG9ROTdfWExYSnpFQU15Mi1RLmY4YzdFTFVPVHhZ

SICKLE CELL SITE STANDARDIZATION UMTH

GANSID April 4, 2025 1:42 pm

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YouTube Video VVVVM2FKNG9ROTdfWExYSnpFQU15Mi1RLjM0QXdMODBCZERz

Data collection, Registry and Clinical Trial Site Standardization Programs Nigeria

GANSID February 15, 2025 5:10 pm

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YouTube Video VVVVM2FKNG9ROTdfWExYSnpFQU15Mi1RLnhhMnFKTXE3bkdZ

Data collection, Registry and Clinical Trial Site Standardization Programs Maiduguri, Nigeria

GANSID February 15, 2025 5:07 pm

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YouTube Video VVVVM2FKNG9ROTdfWExYSnpFQU15Mi1RLlhFZ2dvZTJJVUVB

Television broadcasting of one of the meetings we held in Nigeria

GANSID February 15, 2025 4:57 pm

Dr. Titi Adeyemo, Joakim Söderberg , and Lanre Tunji-Ajayi, M.S.M discuss the below topics, respectively:

Experience with registry and importance of data collection in LMIC
Phases of a registry: Technical overview
The Registry Vision for Inherited Blood Disorders

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YouTube Video VVVVM2FKNG9ROTdfWExYSnpFQU15Mi1RLklhWTU1S2QtUXZr

Registry in Inherited Blood Disorder

GANSID January 3, 2025 12:21 pm

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YouTube Video VVVVM2FKNG9ROTdfWExYSnpFQU15Mi1RLkM3UWdFZk55TVAw

Working Together Building an Interconnected Alliance to Advance Inherited Blood Disorders

GANSID January 3, 2025 12:19 pm

Prof. Leon Tshilolo, Dr. Shipra Kaicker, Dr. Ziad Solh (discuss the below topics, respectively:

Increasing hydroxyurea utilization throughout the world
Increasing access to Factors in Hemophilia
Increasing access to Iron Chelators in Beta-Thalassemia Major

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YouTube Video VVVVM2FKNG9ROTdfWExYSnpFQU15Mi1RLkRTOWEtY1ZUbUZz

Improving Access to Non Curative Therapies in Inherited Blood Disorders

GANSID January 3, 2025 12:16 pm

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YouTube Video VVVVM2FKNG9ROTdfWExYSnpFQU15Mi1RLm5CZ2xrZ095WmVF

WHO Guidance Framework on Sickle Cell Disease Management in Sub Sahara Africa

GANSID January 3, 2025 12:03 pm

Dr's Andrea Cervi and Jennifer Bryan talk about the below, respectively :
-Episodic Pain in Sickle Cell Disease
-Managing Sickle Cell Pain in Emergency Room

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YouTube Video VVVVM2FKNG9ROTdfWExYSnpFQU15Mi1RLktIQXBVVVl3UTlR

Pain Management in Sickle Cell Disease

GANSID January 3, 2025 11:59 am

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Congress 2024 videos

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YouTube Video UExBYnA1WndSQVZQN2lNVXUtU3QwclVjQkkzUFM3OEFNcS4xMkVGQjNCMUM1N0RFNEUx

Registry in Inherited Blood Disorder

GANSID January 3, 2025 12:21 pm

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YouTube Video UExBYnA1WndSQVZQN2lNVXUtU3QwclVjQkkzUFM3OEFNcS4wOTA3OTZBNzVEMTUzOTMy

Improving Access to Non Curative Therapies in Inherited Blood Disorders

GANSID January 3, 2025 12:16 pm

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YouTube Video UExBYnA1WndSQVZQN2lNVXUtU3QwclVjQkkzUFM3OEFNcS4wMTcyMDhGQUE4NTIzM0Y5

WHO Guidance Framework on Sickle Cell Disease Management in Sub Sahara Africa

GANSID January 3, 2025 12:03 pm

Dr's Andrea Cervi and Jennifer Bryan talk about the below, respectively :
-Episodic Pain in Sickle Cell Disease
-Managing Sickle Cell Pain in Emergency Room

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YouTube Video UExBYnA1WndSQVZQN2lNVXUtU3QwclVjQkkzUFM3OEFNcS4yODlGNEE0NkRGMEEzMEQy

Pain Management in Sickle Cell Disease

GANSID January 3, 2025 11:59 am

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YouTube Video UExBYnA1WndSQVZQN2lNVXUtU3QwclVjQkkzUFM3OEFNcS41NkI0NEY2RDEwNTU3Q0M2

Europe, Africa, Asia PAC, Middle East Capacity Building Workshop

GANSID December 5, 2024 9:49 pm