Congress Videos

Congress 2024 videos

Dr. Titi Adeyemo, Joakim Söderberg , and Lanre Tunji-Ajayi, M.S.M discuss the below topics, respectively:

Experience with registry and importance of data collection in LMIC
Phases of a registry: Technical overview
The Registry Vision for Inherited Blood Disorders

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YouTube Video UExBYnA1WndSQVZQN2lNVXUtU3QwclVjQkkzUFM3OEFNcS4xMkVGQjNCMUM1N0RFNEUx

Registry in Inherited Blood Disorder

GANSID January 3, 2025 12:21 pm

Prof. Leon Tshilolo, Dr. Shipra Kaicker, Dr. Ziad Solh (discuss the below topics, respectively:

Increasing hydroxyurea utilization throughout the world
Increasing access to Factors in Hemophilia
Increasing access to Iron Chelators in Beta-Thalassemia Major

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YouTube Video UExBYnA1WndSQVZQN2lNVXUtU3QwclVjQkkzUFM3OEFNcS4wOTA3OTZBNzVEMTUzOTMy

Improving Access to Non Curative Therapies in Inherited Blood Disorders

GANSID January 3, 2025 12:16 pm

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YouTube Video UExBYnA1WndSQVZQN2lNVXUtU3QwclVjQkkzUFM3OEFNcS4wMTcyMDhGQUE4NTIzM0Y5

WHO Guidance Framework on Sickle Cell Disease Management in Sub Sahara Africa

GANSID January 3, 2025 12:03 pm