As we observe Black History Month in the USA, Canada, UK and the Ireland, I take pride in acknowledging the remarkable contributions made by Black pioneers in the fight against inherited blood disorders. This month provides us with the opportunity to reflect on the significant impact Black individuals and communities have had in shaping our world, especially in advancing inherited blood disorders including sickle cell disease.
The Global Action Network for Sickle Cell & Other Inherited Blood Disorders (GANSID) is dedicated to combating along with stakeholders working in hereditary blood disorders, the many challenges faced by the affected millions of people; and we are motivated by the progress we have already made.
Nonetheless, we recognize that we are just starting the work. Inherited blood disorders have a disproportionate impact on communities of color, with Black individuals being particularly affected! As such, it is crucial that we continue to strive for a future where inherited blood disorders no longer hinder the health and well-being of individuals and families globally.
We understand the importance of diversity and inclusion in the fight against inherited blood disorders. Black scientists, doctors, and researchers have made significant contributions to this field, and we are committed to creating a space where everyone is valued and empowered to making a difference. We believe that diverse perspectives lead to better outcomes, and we are dedicated to ensuring that all voices are heard and respected.
We also recognize the importance of education and awareness in the fight against inherited blood disorders. Many people are not aware of the impact these conditions have on individuals and communities. We will continue to raise awareness and educate the public through collaborations with our member organizations, industry partners, clinicians and people with lived experiences. We will work tirelessly towards a future where inherited blood disorders are better understood and more effectively treated.
As we celebrate Black History Month, let us honor the contributions of those who have come before us and continue to work towards a brighter future. Let us celebrate the recent breakthrough therapies for sickle cell and thalassemia disorders, and stand together in the fight against inherited blood disorders and empower all for progress.
Yours in advocacy,
Mrs. Lanre Tunji-Ajayi, M.S.M
