DURHANE WONG-RIEGER, PHD is Chair of Rare Disease International, Pres-ident of Asia Pacific Alliance of Rare Disease Organizations, Treasurer of UN NGO for Rare Diseases, Chair of Patient Advocates Constituency Committee of International Rare Disease Research Consortium, and on the Editorial Boards of The Patient- Patient Centred Outcomes Research and Rare Diseases and Orphan Drugs Journal.
In Canada, she is President & CEO of the Canadian Organization for Rare Dis-orders, the Institute for Optimizing Health Outcomes and Canadian Heart Pa-tient Alliance.
She serves on Canada’s Rare Disease Drug Strategy Implementation Advisory Group, Canada’s Rare Disease Network Steering Committee and Canada’s Newborn Screening Advisory Group.
Durhane has a PhD in psychology from McGill University and was professor at the University of Windsor, Canada. She is a certified Health Coach and author of three books and many articles
