MSc in Haemoglobinopathy, University College London
Founder President: National Thalassemia Welfare Society (1991)
General Secretary: NTWS since 1994
Founder General Secretary: Federation of Indian Thalassemics of India since 1994
Established many Thalassemia associations in India
Founder Member: Indian Alliance of Patient Groups (IAPG)
Director Patient Safety: Genomics And Public Health Foundation (Founding Trustee)
President: Pahuja Trust for Blood Disorders
GANSID SEAR Lead 2024
Member: Advisory Committee Patients for Patient Safety Programme, WHO (since 2014)
Member: Advisory Board, World Patient Alliance (WPA) (2022-24)
Member: Ethics Committees on Human Research.
Member: State Blood Transfusion Council, Govt. of Delhi
Member
Delhi Society of Haematology
Indian Society of Blood Transfusion & Immuno-hematology
Awards
“Life Time Service Award” PHO Chapter of IAP
THE NCPEDP-MPHASIS UNIVERSAL DESIGN AWARDS 2018
Women Astitva Samman 2019
Divyangjan Swabhiman Samman 2023
Bharat Samman Nidhi Puruskar Delhi 2024
Rajib Gandhi Memorial Award 2024 by FBDOI
Reviewer: Pediatric Hematology Oncology Journal
Author: Florilegium of Thalassemia 2014
Co-Author: Chapters in medical text books and guidelines
Guest Speaker: “Regional Workshop on Patients for Patient Safety” Jakarta, Indonesia under WHO July’2007.
International Participation:
Faculty: World Patient Alliance Asia Pacific regional Meeting Dubai Nov’23
Speaker at 1st WPA Conference Oct’22 Rome Italy
Expert Consultation, Enhance patient and family engagement for the provision of safer health care; 5-6 February 2019, Lisbon, Portugal
Global Expert Consultation on WHO Framework on Patient and Family Engagement, Oct’14, WHO Head Quarters, Geneva
Technical Meeting on PFPS Advisory Group Oct’14, WHO HQs, Geneva
Patient Advisory Meeting on NTDT, Zurich, Switzerland March 2013
American Society of Haematology Conference , 2009, New Orleans, USA
International Thalassemia Conferences – Greece, Vietnam, Italy, Singapore, Bangkok,
International Workshops on Thalassemia at Cyprus.
Organizer: 10 National Conferences, 3 National Symposiums and 6 National Workshops on Thalassemia, 4 workshops on Capacity building
