GANSID Year 2023 In Review

Because of your support, the GANSID achieved a great first year!
Thanks to the pharma, members, affiliates and volunteers for making our inaugural year a resounding success

  1. Created the Strategic Planning, Congress Planning, Membership, Scientific, and Healthcare providers Working Groups to advance the inaugural year of the GANSID
  2. Established the African Region platform with 67 patient organizations mainly representing the sickle cell and hemophilia disorders
  3. 55 member organizations across 15 countries and four disease areas-Sickle Cell Disease, Hemophilia, Thalassemia and Aplastic Anemia
  4. Developed different toolkits to support various projects in 2023 not limited to Congress and the World Sickle Cell Day icons
  5. Held 30+ meetings with stakeholders, virtual roundtables with pharma and members, culminating in a hybrid roundtable with 26 in-person and 10 virtual participants at ASH 2023
  6. As its first advocacy initiatives, submitted to World Health Organizations on Clinical Trials Best Practices & Inclusion of Deferiprone on the Essential Medicines List
  7. Held its inaugural Global Congress bringing the hereditary blood ( disorders community together with about 500+ participants.
  8. Status: Became a 501 (C)3 organization in the USA and a Not-for-Profit Entity in Canada
  9. Developed a 5 year Strategic Plan
  10. Raised Awareness @ EHA, ISTH, ASCAT and ASH