Because of your support, the GANSID achieved a great first year!
Thanks to the pharma, members, affiliates and volunteers for making our inaugural year a resounding success
- Created the Strategic Planning, Congress Planning, Membership, Scientific, and Healthcare providers Working Groups to advance the inaugural year of the GANSID
- Established the African Region platform with 67 patient organizations mainly representing the sickle cell and hemophilia disorders
- 55 member organizations across 15 countries and four disease areas-Sickle Cell Disease, Hemophilia, Thalassemia and Aplastic Anemia
- Developed different toolkits to support various projects in 2023 not limited to Congress and the World Sickle Cell Day icons
- Held 30+ meetings with stakeholders, virtual roundtables with pharma and members, culminating in a hybrid roundtable with 26 in-person and 10 virtual participants at ASH 2023
- As its first advocacy initiatives, submitted to World Health Organizations on Clinical Trials Best Practices & Inclusion of Deferiprone on the Essential Medicines List
- Held its inaugural Global Congress bringing the hereditary blood ( disorders community together with about 500+ participants.
- Status: Became a 501 (C)3 organization in the USA and a Not-for-Profit Entity in Canada
- Developed a 5 year Strategic Plan
- Raised Awareness @ EHA, ISTH, ASCAT and ASH