WhatsApp Forum Guidelines

The GANSID’s WhatsApp Forum

What it is
A platform connecting patient organizations serving the benign inherited blood disorders community.

Objectives

  • Connect patient organizations serving the benign inherited blood disorders community
  • Provide some educational support to the members of the platform

Who can join the forum?
Patient organizations serving the benign inherited blood disorders community

Expectations:

  • Only contents relating to benign inherited blood disorders to be posted
  • Post accurate information and check your sources before you share
  • The forum is a safe, non-political platform, and disrespect will be tolerated
  • Share GANSID’s news and surveys with your larger patient community
  • The forum cannot be used to promote personal business or share marketing materials
  • Where unsure about the acceptability of content, seek feedback on it from the forum administrator

Consequences of non-adherence
Two warnings will be followed by removal from the forum

Tips to reduce frustration around too many notifications

  • If you think you are receiving too many notifications, you may hit “Mute” on the WhatsApp forum
  • You will still receive all the messages, but your phone will not send you a notification when there are forum updates