Congress Videos

Hear from clinicians and patient partners on bridging gaps in pediatric-to-adult transition care, addressing psychosocial needs, and sharing lived experiences.

0 0

Explore current innovations and future directions in gene therapy for hemoglobinopathies and bleeding disorders with Dr. Julie Kanter and Dr. Sarah Patterson, moderated by Dr. Leonard A. Valentino.

0 0

Gain insights into global challenges and advances in managing bleeding disorders, including care for women and girls, with Dr. Leonard A. Valentino and Dr. Sarah O’Brien, moderated by Prof. Theresa Nwagha.

2 0

A comparative look at blood and blood product management across Nigeria, Malaysia, and Canada, featuring experts from each country.

0 0

Dr. Derek Chan and Ms. Kristin Reinhart discuss diagnosis and living with aplastic anemia, sharing lessons for the next generation.

0 0

Dr. Michael Recht presents a case study from the National Bleeding Disorders Foundation on building innovative research programs.

0 0

Dr. Titi Adeyemo, Joakim Söderberg , and Lanre Tunji-Ajayi, M.S.M discuss the below topics, respectively:

Experience with registry and importance of data collection in LMIC
Phases of a registry: Technical overview
The Registry Vision for Inherited Blood Disorders

1 0

Prof. Leon Tshilolo, Dr. Shipra Kaicker, Dr. Ziad Solh (discuss the below topics, respectively:

Increasing hydroxyurea utilization throughout the world
Increasing access to Factors in Hemophilia
Increasing access to Iron Chelators in Beta-Thalassemia Major

0 0

0 0

0 0

0 0

0 0