Access the Patients’ Webcasts

A comparative look at blood and blood product management across Nigeria, Malaysia, and Canada, featuring experts from each country.

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Hear from clinicians and patient partners on bridging gaps in pediatric-to-adult transition care, addressing psychosocial needs, and sharing lived experiences.

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Dr. Derek Chan and Ms. Kristin Reinhart discuss diagnosis and living with aplastic anemia, sharing lessons for the next generation.

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Dr. Titi Adeyemo, Joakim Söderberg , and Lanre Tunji-Ajayi, M.S.M discuss the below topics, respectively:

Experience with registry and importance of data collection in LMIC
Phases of a registry: Technical overview
The Registry Vision for Inherited Blood Disorders

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Prof. Leon Tshilolo, Dr. Shipra Kaicker, Dr. Ziad Solh (discuss the below topics, respectively:

Increasing hydroxyurea utilization throughout the world
Increasing access to Factors in Hemophilia
Increasing access to Iron Chelators in Beta-Thalassemia Major

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